Category: Advocacy

Latrice and her mother who is living with dementia

Advocacy / African American / News and notes

March 19, 2024

Abandoned and dismissed: Daughter struggles to navigate the dementia care system

Data appearing in the Alzheimer’s Association 2024 Alzheimer’s Disease Facts and Figures report highlights the need for trained professionals to help dementia caregivers navigate the healthcare system after their loved one receives a dementia...

April Bolin and her mother who had Alzheimer's

Advocacy / African American / News and notes

February 20, 2024

Preventing discrimination against Black Alzheimer’s caregivers

When April Bolin’s mother, Margie, needed to be taken to the hospital at 2 a.m. because of hallucinations due in part to Alzheimer’s, she never thought she’d need to be dressed up to be...

Rohan sits with great grandfather Kerri who had Alzheimer's disease in India

AAPI / Advocacy / News and notes / Walk to End Alzheimer's

September 5, 2023

High school honors student takes on social stigma and Alzheimer’s advocacy

By Kerry Larkey, MSN, RN At just 16 years old, Rohan is an accomplished champion for Alzheimer’s disease awareness. Despite demands from his many academic obligations and extra-curricular activities, he manages to find time...

Advocacy / Early stage Alzheimer's voices / News and notes

May 1, 2023

What dementia treatment could mean for me: Three people living with dementia share their story

Since 2021, the U.S. Food and Drug Administration (FDA) has approved two new treatments for Alzheimer’s and dementia, Aducanumab (Aduhelm™) and Lecanemab (Leqembi™), that slows progression. While these treatments work differently, they both target...

Advocacy / News and notes / The Longest Day

June 3, 2022

Winnemucca resident fights for better dementia access in rural communities

Gini Cunningham is the unofficial “go-to” person for dementia resources in Winnemucca, Nevada. Having both a mother and a sister who died with dementia, Gini has made it her passion to help others dealing...

AAPI / Advocacy / News and notes

April 1, 2022

Staff Spotlight: Charles Duarte, Nevada Public Policy and Advocacy Director

To help you meet our amazing Alzheimer’s Association® team, we are sharing stories of our chapter staff in this blog. Today, we’d like to introduce you to Charles Duarte, Nevada Public Policy and Advocacy...

Advocacy / African American / News and notes / Walk to End Alzheimer's

February 22, 2022

Solano County resident advocates for resources in/for underserved communities

Cheryl Johnson is an Alzheimer’s Association® advocate whose mother, Lorene, had dementia. After Lorene’s diagnosis, Cheryl and her family felt discriminated against because she was an elderly Black woman. Now, Cheryl is doing her...

Claudia and Bud who is living with Alzheimer's on the subway

Advocacy / News and notes

January 20, 2022

Aducanumab trial participant becomes advocate to help others

Bud of Oakland was diagnosed with Alzheimer’s disease in his early 50s and, as a scientist, was eager to participate in a clinical trial. As luck would have it, Bud was able to join...