Advocacy / Early stage Alzheimer's voices / News and notes
by Jennifer Tinkelenberg · Published May 1, 2023 · Last modified May 11, 2023
Since 2021, the U.S. Food and Drug Administration (FDA) has approved two new treatments for Alzheimer’s and dementia, Aducanumab (Aduhelm™) and Lecanemab (Leqembi™), that slows progression. While these treatments work differently, they both target...
In June 2022 we held an online event for younger caregivers. During this event, Rudy Brandt discussed her journey of becoming a caregiver while in her early 20s. She was kind enough to allow...
Early stage Alzheimer's voices / News and notes / The Longest Day
by Jennifer Tinkelenberg · Published March 28, 2022
While forced to retire early because of his primary progressive aphasia diagnosis, James hasn’t had to give up running, one of his favorite activities. In his hopes of helping researchers find a cure, James...
Data from the Alzheimer’s Association® 2022 Alzheimer’s Disease Facts and Figures report highlights the lack of public awareness about mild cognitive impairment (MCI). It also discusses the role primary care physicians play in making...
Having survived sudden cardiac arrest and other challenges in life, Bobbie Joe of Mariposa believes that she is still here for a reason. After being diagnosed with younger-onset Alzheimer’s, Bobbie Joe has focused on...
Bud of Oakland was diagnosed with Alzheimer’s disease in his early 50s and, as a scientist, was eager to participate in a clinical trial. As luck would have it, Bud was able to join...
News and notes / The Longest Day
by Jennifer Tinkelenberg · Published December 16, 2021 · Last modified December 20, 2021
When Mandy Raff’s father, Jim, was diagnosed with Alzheimer’s disease, she reached out to friends and family for support. A good friend, who had recently learned about The Longest Day®, held an event in...
When Paula Robichaud’s sister was diagnosed with younger-onset Alzheimer’s at the age of 56, Paula was surprised that someone could get Alzheimer’s so young. However, it was because of her sister’s diagnosis that Paula...
