It’s been a busy year since I became an Alzheimer’s Association volunteer advocate. I’ve met with Senators and Congresswomen in Washington DC, attended town hall meetings, written letters to the editor, blogged and walked the halls of the California State Capitol, all to publicize the urgent need for action against Alzheimer’s disease. Last week I experienced something new — getting drenched to the bone in driving rain to raise awareness for the cause! (See “before” and “after” pictures below.) Continue reading “Spirits High Despite Unseasonal Deluge at SF’s 2013 Alzheimer’s Walk” »
Tag Alzheimer’s Association
Kelli was diagnosed with Frontotemporal dementia at the young age of 48. Despite her diagnosis she is determined to fight back and will be participating in this year’s Walk to End Alzheimer’s in Petaluma!
Imagine being in my situation: I’m in the prime of my life, a young mother and grandmother, engaged to a man I adore. Living a full, fun and active life – a life so good it should be illegal. Suddenly, my world has flipped completely upside-down in the past year.
This is my true story. I’ve been characterized as a dynamic, loving woman who is known for being ridiculously candid and widely respected, a woman who has enjoyed an extraordinary life as an extremely productive entrepreneur in the salon industry for over 25 years. I am a woman who experienced a horrific “Stephen King” type of childhood and then transformed my experiences into a life of purpose, a life filled performing unlimited hours of volunteer service throughout my community. What would happen was unimaginable … Continue reading “Why I Walk: Kelli’s Story” »
I am a board certified music therapist and work at a skilled nursing facility in San Francisco that specializes in Alzheimer’s and dementia care. Working every day with people who have the disease, I see the effects it has not only on them but on their family members and caregivers as well.
I got involved with Blondes vs. Brunettes through my work. I’m the captain for my building’s team for the Walk to End Alzheimer’s, and a small note was included on an email asking for volunteers to help start this new fundraising event. I quickly jumped on the opportunity as I thought it would bring me to a group of people who want to stay physically active and who all care deeply about a cause that is near and dear to my heart. I was not disappointed. Continue reading “A Big BvB Thank You!” »
I last spoke to my father nearly five years ago. He was finally diagnosed with dementia in 2007 after a number of misdiagnoses and long battles with depression and substance abuse. During our last conversation, I remember feeling so relieved to know that he still knew my name, roughly how old I was and most important, that I would visit soon.
Before I had the chance, however, my father, Alexis Susoev, a name I carry with me every day in mine, Tanya Alexis Susoev, was gone. To this day, I don’t know what happened to my dad. We have hypothesized that he simply forgot the history of his life with us and just started over. For years I carried a lot of anger with me in new and residual pain of his absence and even more, anger in myself for never offering forgiveness and never having the opportunity to say goodbye.
As a result, I allowed him to be forgotten just as I felt he forgot about me. Continue reading “Play Through the Pain” »
The eyes are very close to and densely connected to the brain and thus may be similarly affected by physical changes associated with Alzheimer’s disease.
The researchers in the report hope these tests will someday assist with earlier detection of Alzheimer’s disease. Continue reading “Could the eyes be the window to an Alzheimer’s diagnosis?” »
My name is Zack Smith, and I am an intern with the Alzheimer’s Association, Northern California and Northern Nevada chapter. The Alzheimer’s Association and its mission have become very important to me over my three years of involvement with the cause. Having said that, I think I speak for all those facing Alzheimer’s disease in hoping for a day when the Association’s services will no longer be as necessary—a world without Alzheimer’s disease. As an advocate, and as a young person, I invite you to join me in making this vision a reality.
I would not be who I am today without my grandmother. Her diagnosis of younger-onset Alzheimer’s disease was the most devastating thing that ever happened to me, and is the reason for my continued involvement. She entered the late stages just as I was preparing to graduate high school. My grandmother was like a mother to me, and words cannot express how hopeless and hurt I felt watching her slowly lose her mind. Everything that could have gone wrong on my journey with Alzheimer’s disease did go wrong. Valuable family treasures were stolen from caregivers we trusted. Grandma’s own three children withdrew completely, and I blamed myself because I believed so much pain could have been prevented had I not maintained such a tremendous sense of denial toward Grandma’s condition. When I went away to college I felt I had to choose between my grandmother and my grades as more and more issues arose in my absence. My grandfather completely lost his health caring for the woman he loves. Eventually we had to place Grandma into a dementia care facility. It is hard for me to visit with her for more than thirty minutes to an hour; let alone walk into the locked dementia center. I find it rather painful to reminisce upon my childhood memories with Grandma because I know that seeing her now is nothing like the sense of joy one used to get being greeted by her former self. Family holidays are hard, especially when I set the table and remind myself that one extra place setting is no longer necessary. Continue reading “The voices of our generation are crucial in this fight” »