How do you sum up a day full of inspirational speakers, informative sessions, networking, and policy in just over a minute? Find out below:
Over 900 Alzheimer’s advocates have gathered in Washington, D.C. for the 25th Annual Alzheimer’s Association Advocacy Forum. We have asked attendees from the Northern California and Northern Nevada Chapter to share their insights from the sessions they have attended. Here is what they had to say on Day 1:
El viaje del El Salvador a San Francisco es largo, bastante tiempo para pensar. Cuando tomamos la decisión de traernos a mamá y papá a vivir con nosotros no entendíamos cuanto iba a cambiar nuestras vidas. Tampoco teníamos la realidad del impacto que iba tener esta decisión en nuestras familias. Que ingenuas herramos.
Por adelante teníamos muchas decisiones que discutir. ¿Cómo íbamos a encontrar a alguien que los podía cuidar cuando nosotras estábamos trabajando? ¿Cuál es el proceso para emplear a una cuidandera? ¿Con quién iban a vivir; en la casa de Silvia o la de Linda? Lo único que si sabíamos erra que los teníamos que cuidar. Ellos nos cuidaron cuando erramos pequeñas y ahora erra el tiempo de estar allí para ellos. Siguiendo la costumbre Latina de cuidar nuestros ancianos. Continue reading “Dos Voces, Un Destino: Un viaje largo” »
On April 22, volunteers from around the country will convene in Washington, D.C. for the 25th Alzheimer’s Association Advocacy Forum — the nation’s largest Alzheimer’s policy event. Since 1989, dedicated Alzheimer’s advocates have met annually to share their personal experiences, learn about legislative initiatives, celebrate policy efforts and urge elected officials to make Alzheimer’s disease a national priority. This year a record number of advocates are slated to attend. As the Association’s new volunteer ambassador to the office of Senator Dianne Feinstein, I will attend the Forum for the first time.
Expectations are high that the 25th Forum will make a meaningful difference in the fight against Alzheimer’s, and there’s good reason for optimism. Recent advocacy efforts have produced important results, chief among them the passage of the National Alzheimer’s Project Act and the release of the first-ever National Alzheimer’s Plan. The fight against Alzheimer’s was in the national spotlight earlier this year, when President Obama mentioned Alzheimer’s disease in his State of the Union address, underscoring the critical need for medical research to address Alzheimer’s and other dementias. Continue reading “25 Years of Making our Voice Heard: Let 2013 be the Year of Real Change” »
Carly is a high school senior who is committed to the Alzheimer’s cause because of her experience with her Grandpa. She raised over $2,000 for Walk to End Alzheimer’s in Sacramento last year and has such a compelling story, I had to share it with all of you. I hope you’re as inspired as I am by Carly!
I am a firm believer that people are just a compilation of their experiences. Who you interact with and the memories you have form your character as surely as a thrower molds clay. In accordance with this belief, my childhood is composed of memories that have made me who I am, whether they be good or bad. Some of these events in my life have left such a huge impact on me that I can recall even the smallest details of that moment.
One such time was December 26, 2007. Only the day after Christmas and my family was hosting a larger party of people than we ever do over the holidays. The reason behind this addition to just the usual suspects was because my grandfather, Alfred Dejesus, or most commonly known to me as Papa, was dying of dementia. I remember that day with better clarity than any given day in the last week. It is a day forever imprinted on my memory.
My Papa had been bedridden for days by that point, and unresponsive for the past two. He laid in my grandparent’s bed, my mom and Nana cleaning him and trying to keep him as comfortable as possible. They kept a constant vigil around his bed for the day. As for myself, I had secluded myself in the back room for the day, avoiding the constant stream of crying family and the reality of what was happening. I was just thirteen, and not prepared to lose a family member as important to me as him. Eventually I realized that I too should say my last goodbye. We each got a few moments alone with him, so I was able to talk with some privacy. Continue reading “Grandpa inspires teen to Walk” »
Although there are occasional reports about a scientific breakthrough or positive legislation that’s been enacted, most stories about Alzheimer’s contain bad news. That makes me rejoice! Say what? That probably sounds perverse, so let me give you an example.
On April 4th, the New York Times’ front page screamed this headline: “Dementia Study Predicts a Surge in Cost and Cases.” Now, this is not news to those of us who have been following these issues for decades. We know that the cost associated with Alzheimer’s is skyrocketing; we know that the number of people with Alzheimer’s is projected to increase exponentially. But the main reason my heart does a little flip when I read such headlines is that – finally – Alzheimer’s is getting attention. And lots of it! And not just in scientific journals, but in mainstream media as well!
To a large extent, you have yourselves to thank for this. Continue reading “Finally! Alzheimer’s is getting attention, and lots of it” »
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