After two days of inspiration and education, advocates headed to Capitol Hill to meet with their respective legislators and ask for their continued support in the fight against Alzheimer’s. Here’s how the meetings went for a few of the Northern California and Northern Nevada Chapter advocates:
View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.
How do you sum up a day full of inspirational speakers, informative sessions, networking, and policy in just over a minute? Find out below:
View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.
Over 900 Alzheimer’s advocates have gathered in Washington, D.C. for the 25th Annual Alzheimer’s Association Advocacy Forum. We have asked attendees from the Northern California and Northern Nevada Chapter to share their insights from the sessions they have attended. Here is what they had to say on Day 1:
View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.
On April 22, volunteers from around the country will convene in Washington, D.C. for the 25th Alzheimer’s Association Advocacy Forum — the nation’s largest Alzheimer’s policy event. Since 1989, dedicated Alzheimer’s advocates have met annually to share their personal experiences, learn about legislative initiatives, celebrate policy efforts and urge elected officials to make Alzheimer’s disease a national priority. This year a record number of advocates are slated to attend. As the Association’s new volunteer ambassador to the office of Senator Dianne Feinstein, I will attend the Forum for the first time.
Expectations are high that the 25th Forum will make a meaningful difference in the fight against Alzheimer’s, and there’s good reason for optimism. Recent advocacy efforts have produced important results, chief among them the passage of the National Alzheimer’s Project Act and the release of the first-ever National Alzheimer’s Plan. The fight against Alzheimer’s was in the national spotlight earlier this year, when President Obama mentioned Alzheimer’s disease in his State of the Union address, underscoring the critical need for medical research to address Alzheimer’s and other dementias. Continue reading “25 Years of Making our Voice Heard: Let 2013 be the Year of Real Change” »
The normally drab halls of the California State Capitol were sparkling with color on March 6 as 160 Californians, clad in bright purple sashes, descended on Sacramento for Alzheimer’s Advocacy Day 2013.
As family members and individuals affected with Alzheimer’s disease, the volunteer advocates met with elected representatives and key staffers to share the impact the disease has had on them, and advocate for policies to help the many Californians confronted with the disease.
Alzheimer’s Advocacy Day, an annual event in California, is an opportunity to connect with legislators on a personal level, and to educate them about the realities of Alzheimer’s and what the legislature can do to improve life for the nearly 600,000 Californians who have the disease. Continue reading “Volunteers Push for Legislative Change at California Advocacy Day 2013” »
Two years ago, at the age of 56, my neurologist informed me that I had been diagnosed with Younger-onset Alzheimer’s disease. My diagnosis was both a shock and a relief in that it finally put a name to and made sense out of all the problems I was having at work and managing my personal affairs.
Lou Bordisso (left), living with Alzheimer’s, advocates in Washington, DC during the Advocacy Forum.
My experience living with this diagnosis is similar to many living with Alzheimer’s. When first diagnosed, my life took an unexpected turn. My future plans, hopes and dreams were altered by a few short words from my medical provider. Abruptly, my life, as I had known it, and the plans I had for it, changed.
Suddenly, I was navigating life insurance policies, trusts, wills, financial and long-term care planning, early retirement, social security disability, state disability insurance, medical directives, and compromised health – all at the same time! It has been overwhelming and confounding. Continue reading “On a Personal Note… (Lou Bordisso)” »
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Chapter Headquarters
Alzheimer's Association of Northern California and Northern Nevada
1060 La Avenida, Mountain View, CA 94043 Phone 650.962.8111
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Alzheimer's Association National Office 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601 Alzheimers and Dementia Blog – Alzheimers Association of Northern California and Northern Nevada
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