Our first guest blog today is from Vincent, who blogs about his experience caring for his mother with Alzheimer’s disease. I encourage you all to check him out at www.dementia-mama-drama.com
What do you remember? If I asked you how your day was today, what would your answer be? “Another day, another dollar.” “Nothing special.” “TGIF!” Our lives are made up of our memories. When you’re losing your memory, the struggle to keep your memories can be the longest day. So I asked Mama what her day was like and you can see her answer in this short video:
Today is The Longest Day – Summer Solstice, the day with the most hours of daylight. And on this Longest Day, we are honoring people with Alzheimer’s disease and their care partners for the journey they are on. All across the country, there are teams of people spending 16 hours participating in physical activities to symbolize the endurance required to cope with the disease.
For care partners, any day can be their longest day – it doesn’t have to be tied to the amount of daylight. It takes a lot of time, energy and strength to manage a household, provide transportation, organize a schedule, provide personal care, offer love and hope, create a safe environment, the list goes on, for a person that is losing or has lost those abilities. But our care partners do it every day with love, respect, and dedication. It’s not always a perfect day but, these care partners persevere because they have found ways to cope and manage; they find humor in the day, they allow themselves to cry, they ask for help, they realize their limitations and the limitations of their loved one, and they know tomorrow is another day. Continue reading “The Longest Day: Caregivers – Today we honor YOU!” »
Everyday I feel honored to work with such amazing individuals. I want to share with you an article that was written by one of our early stage individuals – Charles Warner. Charles is a talented writer and has some great insight on how to cope and plan after an Alzheimer’s diagnosis.
Plan for the Future but Live in the Now
By: Charles Warner
I was diagnosed with Alzheimer’s in December of 2011. My physician was quite to the point, he told me the diagnosis and said “no more practicing law and no more driving”. Although somewhat taken aback, and I confess a bit in denial, I appreciated his being direct and followed his advice. I closed my law practice and began a new and different life.
I knew I needed to plan for the financial future and to come to terms with having Alzheimer’s. I will explain how to address the financial (estate planning) issues. I am still working on dealing with the disease, so that will be a progress report. Continue reading “Plan for the Future but Live in the “Now”” »
We live in a mobile society. It’s no longer the norm for families to live in the same town or state. Our families can be spread across the globe. That, in conjunction with our recently released 2012 Alzheimer’s Facts and Figures report that states 800,000 individuals with Alzheimer’s live alone, could be the reason that our Helpline (800.272.3900) is getting more calls from ‘long-distance caregivers.’
A long-distance caregiver is someone who spends significant amount of time or money to make a trip to their loved one or uses vacation time to regularly check-in with their loved one. A long-distance caregiver may also rely on friends and neighbors local to their loved one to find out what’s going on.
We received a call a few weeks ago from one of our volunteer support group facilitators who was working with a woman who had a distressing experience while out in the community with her husband who has Alzheimer’s disease. We’ll call her Jane and we’ll call her husband John.
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
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Chapter Headquarters Alzheimer's Association of Northern California and Northern Nevada 1060 La Avenida, Mountain View, CA 94043 Phone 650.962.8111