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Alzheimer’s Association of Northern California and Northern Nevada Newsletter

National Caregivers Month: Laurie is a long distance caregiver

November is National Caregivers Month, so we’re celebrating and honoring our Alzheimer’s caregivers by sharing stories written from the caregiver point of view. We’re starting today with Laurie, who is a long distance caregiver for her mother who was diagnosed with the disease three years ago. It was Laurie’s 25th birthday when she got the call about her mother’s diagnosis.

Laurie, her mom and sister

For about two years, my sister and I had really noticed our mom’s short-term memory was struggling. We used to joke about it and laugh and didn’t take it too seriously. Here and there we’d say, “Mom had an Alzheimer’s moment” and shrug it off.

But when she lost her job because of it, it wasn’t funny. Something was obviously wrong. She went to the doctor proactively and had tests done, and the diagnosis was dementia and early-onset Alzheimer’s. My mom called my older sister Sara to tell her, then I got the call from Sara. It was absolutely devastating and on my 25th birthday. I don’t remember too much about it except feeling frozen and like I had gotten a call that she passed away. Continue reading “National Caregivers Month: Laurie is a long distance caregiver” »

On a Personal Note… (Lou Bordisso)

Two years ago, at the age of 56, my neurologist informed me that I had been diagnosed with Younger-onset Alzheimer’s disease. My diagnosis was both a shock and a relief in that it finally put a name to and made sense out of all the problems I was having at work and managing my personal affairs.

Lou Bordisso

Lou Bordisso (left), living with Alzheimer’s, advocates in Washington, DC during the Advocacy Forum.

My experience living with this diagnosis is similar to many living with Alzheimer’s. When first diagnosed, my life took an unexpected turn. My future plans, hopes and dreams were altered by a few short words from my medical provider. Abruptly, my life, as I had known it, and the plans I had for it, changed.

Suddenly, I was navigating life insurance policies, trusts, wills, financial and long-term care planning, early retirement, social security disability, state disability insurance, medical directives, and compromised health – all at the same time! It has been overwhelming and confounding. Continue reading “On a Personal Note… (Lou Bordisso)” »

Caregiver Corner: Finding In-Home Care

In-home care includes a wide range of services provided in the home, rather than in a hospital or care facility. It can allow a person with Alzheimer’s or other dementia to stay in his or her own home. It also can be of great assistance to caregivers.

In-Home CareNot all in-home services are the same. Some in-home services provide non-medical help, such as assistance with daily living. Other in-home services involve medical care given by a licensed health professional, such as a nurse or physical therapist. Common types of in-home services include:

Alzheimer’s Basics: Related Disorders

Dementia is a general term for loss of memory and other mental abilities severe enough to interfere with daily life. It is caused by physical changes in the brain. Alzheimer’s disease is the most common type of dementia, accounting for 60 to 80 percent of cases. But did you know the Alzheimer’s Association is here to help families cope with all forms of dementia? Other causes of dementia include:

Continue reading “Alzheimer’s Basics: Related Disorders” »

On a Personal Note…(Dr. Diane Woodruff)

Dr. Diane Woodruff and her mother

Dr. Diane Woodruff cares for her mother, who was diagnosed with Alzheimer’s disease approximately four years ago. She regularly attends two different caregiver support groups sponsored by the Alzheimer’s Association.

“They have helped me deal with all kinds of practical issues like how to stop mom from driving, how to move mom out of her home in Santa Cruz to Sacramento, how to find a good place for her to stay, how find a doctor and dentist that are sensitive to Alzheimer’s patients,” she said. “They continue to give me great advice and moral support every step along the way; they have helped me through my darkest moments.”

One of the groups she attends is led by Frances Kakugawa, an award winning poet and writer who cared for her own mother with Alzheimer’s. Frances encourages her group to journal and write poetry to deal with the many feelings that come up when serving as a caregiver to a loved one with Alzheimer’s. Diane had never written poetry before but was encouraged by Frances who says that she “especially enjoys working with people who claim writing has been limited to their grocery lists.”

Continue reading “On a Personal Note…(Dr. Diane Woodruff)” »

Alzheimer’s Changes the American Dream

Phuong Quach gets debriefed on the issues at the Advocacy Forum

Phuong Quach gets debriefed on the issues at the Advocacy Forum

When we first came to the United States as refugees from Vietnam, my father worked in a cereal factory with a starting wage of $3.75 per hour. Soon after, my mother also started work in a factory. With long hard hours of labor and determination, they were focused on the American Dream. Over the years, we really did become the poster family for the American Dream.

My parents were able to buy a home and a new minivan. All four of their children went to private liberal arts colleges, received advanced degrees and now have good careers. We made it and truly became Americans.

Continue reading “Alzheimer’s Changes the American Dream” »

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