Angie, family caregiver

Angie’s husband John was diagnosed with Alzheimer’s in 2008. This is their story.

Uneasy Rider

John has become very fearful of riding in the car. Part of the problem is that somehow he believes that he is driving the car. Granted he’s seated in the front looking out through the windshield, but as I have pointed out to him over and over he is in the passenger seat.

Nonetheless, it doesn’t stop him from believing that he can control the car with his feet or by bunching up his pant leg and twisting it in the direction he wants the car to turn.

John Driving

John trying to steer the car using his pant leg.

Sounds funny as I write this, but it is by turns terrifying, sad, frustrating and infuriating. This behavior began last September. I was driving home from an outing and John became hysterical: Truly scared out of his wits. I pulled over to find out what had happened and he started to lecture me about my driving. I was going too fast, passing too close to parked cars, not paying attention to name a few of the high points.

At first I reacted with surprise, but as he went on and on, I got angry. How dare he tell me how to drive! I had driven him around (his choice) for years and not a peep, but now that he can’t remember how to get home, he’s going to lecture me about my driving habits? I don’t remember much about the drive home except that it involved a lot of yelling.

After letting off some steam at my support group, I decided to try other tactics. I was returning to work after a three-month medical leave and would have to drive John to day-care several times a week. I didn’t want to start the mornings screaming at him or vice versa. And he was still in a clinical trial in San Francisco; how was I going to get him there and back? Continue reading “Uneasy Rider” »

What a difference a year makes!

Angie-John 2012What a difference a year has made in our journey with Alzheimer’s.

At this time last year, John was able to care for himself. He could make lunch, walk the dog and do a load of laundry. Today, a mere 12 months later, he is in daycare four days a week and is never left alone.

During the summer, the logistics of our house were ever changing: I was home recuperating from knee replacement surgery. Our grandson had taken a brief vacation, but was back to attend summer school. My mother was our house guest while her home was being retrofitted to handle her decreased mobility.  It seemed if there was a flat surface, someone was sleeping on it. Continue reading “What a difference a year makes!” »

Follow our family caregiver Angie as she takes over our Twitter account for a day #LifeAsACaregiver

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“Me time” takes an unexpected turn when John wants hot chocolate

Saturday mornings are a time that I have carved out for me to do whatever I want. Usually, I get up early to attend a Weight Watcher’s meeting and then hit the grocery store or farmer’s market while inspiration for a thinner me is still fresh enough to keep me away from potato chips.

Last Saturday I arrived early, had coffee and a chat with a couple of WW buddies and weighed in. My renewed commitment to take off the pounds I had regained since John’s diagnosis was starting to show progress! To keep the momentum going, I decided to make a special dinner using whole wheat pasta and lots of veggies.

While at the market I got a call from our grandson, Adam. He said that Papa was asking for a hot chocolate. Realizing my “me” time had just been shut down, I said that I would pick up his drink on my way home. I’ll admit that I dragged my feet a bit before heading to the check out counter, but not by much.

John waits for his hot chocolate at Starbucks

About 20 minutes had passed from the time of the call to my actually loading the car and driving to the Starbucks across the street. Entering the shop I saw John sitting at a table with a man I didn’t know. His face lit up with a smile when he saw me, I glanced around to see which member of the family had brought him. Continue reading ““Me time” takes an unexpected turn when John wants hot chocolate” »

Angie and John, A Love Story: What’s the Same Now

We’re celebrating Valentine’s Day all week with a very special love story. Meet our blogger, Angie and her husband John, who talk Valentine’s day, marriage, commitment, love and life in the face of Alzheimer’s disease.

Angie and John, A Love Story: Our Life Together

We’re celebrating Valentine’s Day all week with a very special love story. Meet our blogger, Angie and her husband John, who talk Valentine’s day, marriage, commitment, love and life in the face of Alzheimer’s disease.

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