Two caregivers share their stories of fire evacuation and the impact it has had on their wives, who are living with Alzheimer’s disease.
Jon Frieseke’s neighbor knocked on his door just after midnight on October 9, 2017, to alert him to a nearby fire. When Jon and his wife, Chris, evacuated, he thought that they would be back in their Santa Rosa home the next day. Jon never imagined that everything in their home of more than 50 years would be destroyed by the fire.
Five different living situations in four months
Shortly after his neighbor woke Jon up, their son, Bruce, called to say that he had evacuated to a local hotel and had gotten a room for Jon and Chris. Besides the clothes they were wearing, all Jon had time to grab was their laptop computer. Around 3 am, the hotel they were in also had to be evacuated.
Next the family went to a hotel in San Rafael, where they stayed for a couple of days. On Tuesday, Jon learned that their house had been destroyed by the fire. Their son, Bruce, also lost his home.
Jon and Chris stayed with their daughter, Anne, in Vacaville for about six weeks, then moved into an apartment in Vacaville for a month. Finally, they found a house to rent back in Santa Rosa, where they are currently living.
Experiencing the generosity of others
[6]Jon and Chris
Relatives, friends and strangers stepped up to help Jon and Chris replace what they had lost. When they were in Vacaville, Anne posted their needs on the neighborhood Next Door site. People donated clothes, as well as furniture for their apartment.
A friend of Anne’s who is a UPS driver shared Jon and Chris’ story with a shoe store on her route. The store immediately donated shoes for them. The experience “lets you know how good people are,” said Jon, “including family, friends and strangers.”
The impact on Chris
Chris had been diagnosed with Alzheimer’s disease [7] over eight years prior to the fire. At the time of the fire, she was still in the early stage [8] of the disease.
It took over a week for Jon to get refills of Chris’ medications. Jon says that while Chris was already anxious by nature, the trauma of the fire greatly increased her anxiety. He has noticed a more rapid decline in Chris’ cognitive health since the fire.
Throughout the aftermath, Jon has worked to remain calm and help Chris. He is thankful that he and his family survived the fire. He continues to attend an Alzheimer’s Association caregiver support group [9]. Chris now attends an adult day program [10] twice a week.
Planning for the worst
Few of us imagine that we could lose everything, but it can help to prepare for the possibility. Similar to purchasing insurance, we put a plan in place, but hope that we’ll never need it.
A few years before the fire, Jon had taken photos of everything in their house and put a copy in a safe deposit box. This has proven to be very helpful in working with his insurance company to itemize their losses.
On his way out the door, Jon grabbed their laptop computer, which provided him with some backups of important documents and some of the photos that were lost in the fire.
[11]What was left of Jon and Chris’ home
Some things can’t be replaced
Jon wished that he’d had an evacuation kit ready to go. The fire was moving so fast that they didn’t have time to grab important items.
Jon also recommends that people periodically review their homeowners or renters insurance policy. It’s important to make sure you have enough coverage to rebuild your home and replace the items you have lost.
Of course, some items cannot be replaced. Chris had been a quilter and all of her quilts were lost in the fire. While Jon had copies of some of his photos on his laptop, much of his photography hobby was lost.
Jon encourages others to plan for an emergency. Here are a few steps you can take:
- Make an emergency plan [12] and prepare an emergency kit [12].
- Identify where you could go. Are there friends or family you could stay with if you needed to evacuate?
- Have extra medication on hand. Learn how to get medical care and prescriptions [13] during a disaster.
- Consider enrolling the person in a safety identification program.
- Make sure medical records are accessible. There are options for online storage or you could share a copy with a family member who lives out of the area.
When your loved one is evacuated
Chris Degenhardt, of Mill Valley, had been caring for his wife Anne, for about six years after she was diagnosed with Alzheimer’s disease. Anne’s disease had progressed to the middle stages. Five weeks before the fire, Anne moved into a memory care community [14].
On a trip to Yosemite when the fire occurred, Chris woke up to an email letting him know that Anne had been evacuated to a church, due to a fire. Not getting through by telephone, Chris drove back to the bay area. By the time he got there, Anne had been moved to a care community in Albany.
Creating a “plan B”
The community Anne had been living in was destroyed by the fire. Chris had been focused on getting Anne settled in her new home, but hadn’t thought about what he would do if it didn’t work out.
Anne had not been adjusting well prior to the fire. After the fire, Chris chose to pick Anne up from Albany and bring her home to Mill Valley. Their son, Justin, was visiting at the time. He helped Chris get Anne settled back at home.
Losing some of her favorite possessions
Chris had moved many of Anne’s favorite items to the community where she was living. Anne had been a quilter, so they put some of her quilts up in her room as wall hangings, along with her favorite photos and paintings.
Everything Chris had put in Anne’s room burned in the fire. He is sad that those items were lost. Chris had not yet secured renters insurance to cover the furnishings and Anne’s clothes.
The impact on Anne
Anne handled the evacuation well and was happy to return home. But a few nights later, she started to revisit the fire. As they were getting ready for bed, Anne would tell Chris that she smelled smoke. This behavior continued for several months.
Not wanting to put Anne through another difficult transition, Chris quickly decided to keep Anne at home. But he knew that he would need to hire in-home care [15] to help him.
Great advice from a friend
[16]Northern California Fire Map in early August
Like Jon, Chris expressed gratitude for the support he and Anne received during this time. “People were very helpful,” said Chris. “They brought food and spent more time with Anne so that I could do what I needed to do.”
It was difficult to conduct interviews for caregivers at home, so while Justin or friends stayed with Anne, Chris held initial interviews at a local coffee shop. Then he had the finalists come to their home to meet Anne.
One of the best pieces of support came from a friend of Anne’s, who told Chris: “I know that you’re independent. But if someone offers help, take it.”
Lessons for us all
The recent fires in California and Nevada provide a reminder that a natural disaster can strike at any time. We know that it is important for all of us to plan for the worst. For those caring for someone with Alzheimer’s or another cognitive impairment, there are additional items to consider.
We have tips, items to put in an emergency kit and what to do if you are evacuated [12] on our website.
Our 24/7 Helpline [17] is also a helpful resource for what to do in an emergency: 800.272.3900. Call us for:
- Information on accessing community and support services
- Information on preventing wandering
- Possible financial respite scholarship to pay for emergency care, up to $1,000
Learn more:
- Alzheimer’s Association tips for disaster preparedness, what to put in an evacuation kit and evacuation tips [12]
- Medic Alert with Wandering Support [18] national emergency response service for individuals who wander or have a medical emergency
- Medicare information [13] on getting medical care and prescription drugs in a disaster or emergency area
- American Red Cross [19] information about preparing for an emergency and where to find shelter and supplies in a disaster
- Ready.gov [20] has information about what to do before, during and after a disaster.